Chase was born with a fantastic head of hair! I am sitting here snuggling with him as he sleeps and I love nothing more than to feel his fuzzy little head snuggle into my neck.
It's hard to tell because he has so much hair, but if you look closely you can see how the back of his head is starting to kind of poke out in the back. Honestly, had we not already been through this before I really wouldn't think it all that odd. I might tell the doctor he has a bump on his head but I doubt it would be something that would get x-rayed for quite some time. Which makes me thankful in a weird way that we have been down this road already. Because had it not been caught for another six months or so, the endoscopic surgery would not be an option for him. The endoscopic is so much less invasive than the traditional CVR and I am grateful it is an option for Chase.
Such a shame to put a helmet on such a fine head of hair! I'm going to miss the fuzzy snuggles!
To catch you up to date, Chase has been scheduled for surgery July 14th. Being paranoid about it from what we went through with Ryan, I immediately began looking for signs of craniosynostosis as soon as he was born and so did his pediatrician. It was not nearly as apparent as it was with Ryan. He had a ridge along his sagittal suture which can sometimes be a sign of it but babies sutures tend to overlap when coming out anyway. So there was nothing alarming to speak of.
At his two week check-up the ridge was more defined and a “bump” was more evident on the back of his head. Knowing the time restrictions for the endoscopic surgery, the pediatrician ordered x-rays which showed suspicion of sagittal synostosis and they recommended a CT which confirmed the diagnosis.
This type of surgery has to be done before 4 - 6 months of age in order to take advantage of the rapid brain growth that babies have. So after the neurosurgeon reviewed the CT, the surgery was scheduled and we are now making plans to head down there in less than two weeks.
I can’t believe how quickly this is approaching!! It breaks my heart to think of such a little (and I use that term loosely as I know he is such a big baby) one having to go through any surgery, let alone one where they will be removing part of my son’s skull. But we are happy with Ryan’s results and trust we are doing the right thing for Chase.
So that is where we are at. I plan to post frequently as we make our way through the ordeal. I just want our story shared so that other’s can know should they ever encounter anyone else in similar circumstances.