To catch you up to date, Chase has been scheduled for surgery July 14th.  Being paranoid about it from what we went through with Ryan, I immediately began looking for signs of craniosynostosis as soon as he was born and so did his pediatrician.  It was not nearly as apparent as it was with Ryan.  He had a ridge along his sagittal suture which can sometimes be a sign of it but babies sutures tend to overlap when coming out anyway.  So there was nothing alarming to speak of.  

At his two week check-up the ridge was more defined and a “bump” was more evident on the back of his head.  Knowing the time restrictions for the endoscopic surgery, the pediatrician ordered x-rays which showed suspicion of sagittal synostosis and they recommended a CT which confirmed the diagnosis.

This type of surgery has to be done before 4 - 6 months of age in order to take advantage of the rapid brain growth that babies have.  So after the neurosurgeon reviewed the CT, the surgery was scheduled and we are now making plans to head down there in less than two weeks.

I can’t believe how quickly this is approaching!! It breaks my heart to think of such a little (and I use that term loosely as I know he is such a big baby) one having to go through any surgery, let alone one where they will be removing part of my son’s skull.  But we are happy with Ryan’s results and trust we are doing the right thing for Chase.  

So that is where we are at.  I plan to post frequently as we make our way through the ordeal.  I just want our story shared so that other’s can know should they ever encounter anyone else in similar circumstances.  

Susan Treolo
6/29/2011 12:32:31

We will keep you all in our prayers. If you don't mind we will add you to the prayer list at the Conference office.

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Barbara Dryden
6/29/2011 20:58:25

Your a great Mom and we love you. You all are in our prayers.

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LaVera
7/4/2011 20:31:36

Hope all goes well. Our thoughts and prayers are with all of you.

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Connie Veal
7/5/2011 02:59:01

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Connie Veal
7/5/2011 03:03:05

Wow! Just read the news! I am sorry that this beautiful little baby has to go through this, grateful that he has a good way to get past it, and thankful that your family has been down this road and knows what to expect in the months to come! Definitely extra prayers as you watch and wait for each stage to pass by and the special new baby in the family will be as comfortable as possible. God gives you strength as you need it, and then some! I love you all!

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