Today I am thankful.  Craniosynostosis appeared in our lives over 5 years ago and I’ve never been the same since.  I am more passionate.  More vocal.  More demanding.  More humble.

I’ve been introduced to a world that for some parents there are daily struggles and worries about what the future will hold for their little babies.  I’ve had my eyes opened to the breaking hearts of others as they entrust their little ones to the scalpel of surgeons.  

I’ve had my heart broken.  I’ve seen the stares of passersby as they question what is wrong with my son.  I’ve been accused of being neglectful...of being the cause of my son’s condition.  

I’ve felt helpless.  Searching for answers but finding none.  Wanting to kiss it away but finding I can’t.

I am thankful.  

Thankful that my son is just fine.  That surgery went well.  That he has a wonderful future ahead of him.

I am thankful that I’ve been able to get to know hundreds of other people that know the road we have been down.  I am thankful I can tell our story to others about to go down this road.

I am thankful that the hurt of my broken heart has opened my eyes to what real problems are.  That I can relate to others as they feel the judgmental stares of people who have no clue what they are really going through.  

I am thankful for seeing the value in all life.  No matter how imperfect our world deems it.  

I am thankful for prayers.

I am thankful for patience.

I am thankful for differences.

For imperfections.

For reality checks.


I am thankful for craniosynostosis.  For what it has made me.  For enlightening my world.




I am thankful...