Noggin News
  • Home
  • What it is
  • Ryan's Story
  • Chase's Journey
  • Endoscopic Strip-Craniectomy
  • Helpful Links
  • Contact Us

We're almost done...

7/19/2011

3 Comments

 
Picture
We made it through the weekend without much concern.  Chase was plenty swollen around his head and eyes.  But that is to be expected.  We gave him acetaminophen and ibuprofen around the clock to keep up on any pain he might be having.  By Sunday we started weening him off of the meds and his swelling was basically gone.  We spent a nice relaxing weekend not doing anything too strenuous.  

Picture
By Monday morning Chase was a happy boy and feeling like himself again.  He had his appointment to get his head scanned for his helmet.  Getting scanned should be a fairly simple process.  But both times Chase was ready for a nap so was quite cranky for the scan.  The poor orthotics guy had quite a challenge but was very patient and was able to get what he needed.

Picture
The helmet was ready to be fitted this morning.  A few modifications were made and a schedule for getting used to wearing the helmet was given to us.  One hour on...one hour off...and adding more time until he wears it 23 hours a day (only taking it off for bathes) for about 18 months.  He has already worn it for a few hours today and seems quite indifferent to it.  

Picture
We decided to drive downtown today and take a walk around the River Walk.    I had almost forgotten about all the looks you get from people.  Kids are honest and are naturally curious.  It's almost funny to me at times to see their parents reactions.  A kid will say out loud, "What's wrong with his head mom?"  Parents will quickly try to hush their kids as if there is something wrong with asking that question.  We get a lot of looks from adults where you can tell they are asking the same question...but they quickly look away as if to say, "Don't look...don't look...don't look.  It's not polite to stare."  Then there are those that look at you and almost give you a look of...I don't know...pity maybe.  As if I might be embarrassed by  having a kid with "something wrong".  I'm not!  I'm incredibly proud of my kids just as any mom.  And there isn't "something wrong" with my kid.  Nobody is perfect.  And he's just fine!  Honestly my favorite are the people who are naturally curious and actually have the guts to ask.  I love it when people ask and I'm more then willing to tell them my story.

Well...tomorrow is our final day here!!  In a way it seems like we've been here forever to the point it feels like home almost.  On the other hand...I can't believe we're leaving already.  We'll meet with the neurosurgeon one more time and get the ok from him to head home.  We'll also get the schedule of when we are to come back.  I know this process well and look forward to making our next trip back.
This is your new blog post. Click here and start typing, or drag in elements from the top bar.
3 Comments
Barbara
7/20/2011 04:37:56 am

Glad to hear everything is going so well. He is such a little cutie, can't wait to get to meet him. Thanks for keeping us all up to date with your blog. You are doing a great job with it. It looks great and your story line is very well worded. Hope to see you soon.

Reply
Connie Veal
7/22/2011 05:13:18 pm

Reply
Connie Veal
7/22/2011 05:28:44 pm

This is the second time I have not known enough about blogging, I guess, that I hit the return key instead of the tab key and leave a comment that is not there - sorry about that! I am educable, though! :)

I am so glad for the upbeat reports and stories of the process of helping Chase, and that the family is all there to be a part of helping - being a family! You are all so very precious and I applaud your strength and stamina for the extra events in life that show up; and rearranging plans to keep the family fully interlocked with loving care and instilling happiness in the joys of growing together!

God's blessings on you as you continue to walk in His ways and model for your young children the way to tackle tasks as they arise. Ever since Jeff was born, I have always associated him with the idea of
"peacefulness". It is a great privilege to see my youngest brother helping lead in the family as the father and husband of a peace-filled family. Jeff, I am so happy that Brenda and you have teamed up as a family unit and spread sunshine outward to others all about you. A real blessing to all who come to know you or cross paths with you along the way! Peace to all of you, even more than the great amount of peace that you so unselfishly share! I love you and my precious niece and nephews!

Reply



Leave a Reply.

    Mom - a.k.a Brenda

    I am the proud mother of the three most amazing blessings God could ever give me!

    Archives

    August 2012
    July 2012
    March 2012
    February 2012
    January 2012
    December 2011
    November 2011
    October 2011
    September 2011
    August 2011
    July 2011
    June 2011

    Categories

    All

    RSS Feed

Powered by Create your own unique website with customizable templates.